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Below are the 20 most recent journal entries recorded in Adventures in Disability Benefits, Gov't & Private's LiveJournal:

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Monday, May 12th, 2014
7:37 pm
Substantiating Invisible Disabilities
Does anyone have experience with an SSI application based on migraines or something like chronic fatigue? I just had a denial after my hearing, and the administrative law judge wrote something about migraines not being medically verifiable. I don't know what I am going to do because I cannot prove that I get migraines.
Friday, January 17th, 2014
1:29 pm
Random question...
Bare with me here for a bit. When I originally won my disability case way back in the day. I was told that I made more then I am able to receive in Michigan. I think at the time they were saying I was going to get like I dunno $1900 but after I won they the said the limit to what you can get from SSDI at the time was $1300 something. And so at that time again I think from my back pay I lost almost like $50,000 or something ridiculous and I lose about $600 dollars every month. I remember asking around then to multiple people at social security on the phone etc and they all said this was true. However recently I heard from a friend that has a friend on disablity and he apparently makes waaaaaaay more than me. So im wondering now did I actually get screwed all those years ago? I won my case basically with just myself I didnt have a lawyer. Or is there a disablity that is higher then SSDI? And if this isnt the case though, what would happen if I move out of Michigan. Are my benefits recalculated and maybe I would get more in a diff state. I hate to say it but im almost getting tired of Michigan and fighting all the time for anything. If you can help thanks
Tuesday, October 22nd, 2013
4:33 pm
Earning money online?
Hello, I started receiving SSDI in May. I would like to try doing some transcription online through Amazon Mturk. Even if it does work out I don't see myself earning more than $300-500 a month and $50-100 would be more likely. Could this cause trouble with my SSDI benefits? Do I need to call and tell them about it? Does anyone else earn some money online and get a 1099? Thanks for any help.
Tuesday, August 20th, 2013
12:38 pm
asset limits
i got a letter today from the county/state saying that my IRA (rolled over 401K) is now over the asset limits. so i guess i either have to cash it out or i lose my Medical Assistance.

does anyone have any experience with cashing out IRAs? its $20,000. if i cash it out early, i've heard taxes and penalties will cost me half that amount. thats ten grand i'll lose! and it'll screw up my taxes.

i dont know what i'm doing here, and the only advice from the county/state was that if i want to stay on MA, the IRA has to go. help?
Saturday, June 29th, 2013
3:27 am
Anyone tried to get back on SSI?
Long story short, I was on SSI a while back, but managed to work full time for a while.  Got my benefits messed up, still trying to pay backpay on what I was overpaid, but I'm becoming progressively more disabled again.  I had spine surgery in January and am not doing well....working my 20 hour a week job (I'm a doctoral student on top of that, taking the bare minimum number of semester hours) is all I can manage, and I took incompletes for several of my classes this year because I just couldn't do it with pain, nerve issues, cognitive problems related to medications, and resulting mental health problems (on top of a birth defect that wouldn't necessarily qualify me for benefits if I could actually afford to get proper treatment).

TL;DR:  How hard is it to get back on SSI?
Thursday, May 16th, 2013
7:57 pm
Designating a payee and transferring benefits
My son is on SSI for mental health issues (he qualified due to bipolar disorder, but has other diagnoses as well). He is 21 years old, lives on his own, and is currently his own guardian/handles his own money/etc.

I can go into the long back story if needed, but the short version is that he's made some choices that have created a difficult situation for himself. I'm trying to give him suggestions on what he can do, but there are some things I don't know. I'm hoping someone here has some experience with these issues that they'd be willing to share.

1) Making someone else your payee. My son and I have discussed putting me in charge of his money so he won't spend it all before he takes care of necessities. If that's the route we decide to go, what are the steps we need to take?

2) Transferring benefits to a different state. We live in Texas. We have a relative in Missouri who has offered to let my son come stay there for a while to get a fresh start. Would my son's SSI move with him, or would he have to reapply there?

2a) My son is also on Medicaid. If he moved to Missouri, would that transfer, or would he have to reapply there?

Thanks in advance for your help!
Thursday, October 25th, 2012
12:04 pm
Disability Tax returns...
I think there was once a discussion about this but I forget.. Is it worth it, or does anyone actually bother to do their taxes when there on disability? I know you have to make 25,000 or whatever it was to be taxed in the first place, so it doesnt really matter. Since I dont make anywhere near that much. So I never bother to do it. But is it worth? Do people actually make money back? I get 17,000 from disablity a year about. Would I get money back for doing my taxes? Or would be be something insignificant like the same I would pay someone to do my taxes for me in the first place lol.
Friday, October 19th, 2012
2:23 pm
SSI Review
When you have your SSI review & they ask if you've worked outside the home, does volunteering count? I just did my review over the phone & I said that I haven't worked. I have done some volunteering, thug. I tried to call the worker back to ask, but her voicemail seems to be off.
Tuesday, September 4th, 2012
2:11 am
Random but for people that live in michigan....
I dont post here much and well from livejournal itself I havnt met to many people that are sick.. But for the people that do or dont know when i was younger basically my doctors fucked me up and didnt admit it to me till I was dying in the hospital. It was a big mess I found out a lot of my records were messed up, even to the point of UofM faking my signature on papers etc....

Well now there is www.myuofmhealth.org . I urge anyone that lives in michigan to sign up for this. I was foolish when I was younger and assumed my doctors were trying to help me and never bothered to look to ask for my test results or what they were saying in records. I guess a easy example would be I was always told I only had IBS, when the whole time my liver had actually been shitting on me and I had been testing positive for corhns. And uofm was just writing in the recrods that I was telling them my only hobbies in life were drinking. =/

Anyway this is not super exact as it is, but I was suprised what was actually put up online. Its still missing shit but it has stuff that normally UofM is not super excited about admiting I have after the whole malpractice yadda yadda stuff happened.... Anyway I made a video showing it to.. shrug

Again just something random.. dunno if it will help but... http://www.youtube.com/watch?v=3jRPp5YL9RI&feature=youtu.be
Wednesday, August 15th, 2012
11:17 pm

Hi, I just joined this community with the purpose of seeking some information, though I'm not sure how active this place is.

I am not on any disability and I don't know much about it, either, but I've been looking into it because I am pretty sure I would like to apply.  From what I'm reading, I'm not sure if I'm even "qualified" so I'm hoping those of you that know about it can answer some questions for me?

Cut because it's a bit long, my history of illness...Collapse )

Any information and advice would be GREATLY appreciated.

Current Mood: depressed
Sunday, July 22nd, 2012
1:23 am
My b/f was on SS disability because he has ocular albinism and is legally blind. The government kicked him off social security because he was making too much money. If they based their assessment on what he made yearly he was not making more money than was allotted but because they assessed it by monthly he did. They now with hold his income tax return as restitution. What legal action should or could be taken in this situation or is he doomed to paying the government back for however long it may take?
Monday, April 23rd, 2012
12:27 pm
OK, so story time:
I’m on SSI, have been for years, and I have a friend who’s looking to me as an expert/knowledgeable in Disability qualifications. Only problem is I’m only one brain, and she and I are worried that I’m biased because I know her. So I’m looking to you guys for an opinion.

Friend is currently on her third try at college, and is finally a last semester Senior. However, she’s in serious danger (according to her) of not passing all/any of her 4 classes because of her extreme depression. She’s unable to get out of bed some days, and thus has missed classes, which lowers her grade by a letter for every day she’s missed (4 in two classes, 3 in one, and 2 in the last). She’s been unable to pull her thoughts together to complete several/some assignments in all of her classes, and is generally doing very poorly, even though she’s very intelligent.

When she hasn’t been in school, Friend has been trying to hold down various retail jobs, and usually ends up getting fired or quitting because she’s too depressed to care to work.
Friend has been diagnosed w/ Bi-Polar, and has been in the psych ward 2x during the past 5 years.

Friend also has a very UNsupportive family, and really is sure how they (or her boyfriend) will react if she even tries for Disability/SSI. So advice there would be a help as well.

With what I’ve told you, do you think that Friend has a case for getting on SSI/SSDI?
Monday, April 2nd, 2012
5:09 pm
question about ssdi
i have been on ssdi but i like to go back to school, i do have anxeity attacks but if i can overcome it can i have a dream? is there ways to keep my benefits i had surgery and stomache issues been going to ers and doctorsand i can't loose my medical benefit as i need them i been taking meds as well. but i want to have a nice career job. and i plan to live with my b/f will they reduce my ssdi? i still live with my mother but i want my own life. i want to have a better future for myself and not be on ssdi forever
Monday, October 24th, 2011
6:42 pm
Social Security Announces 3.6 Percent Benefit Increase for 2012
Cost-of-Living Adjustment is First Since 2009

Monthly Social Security and Supplemental Security Income (SSI) benefits for more than 60 million Americans will increase 3.6 percent in 2012, the Social Security Administration announced today.

The 3.6 percent cost-of-living adjustment (COLA) will begin with benefits that nearly 55 million Social Security beneficiaries receive in January 2012. Increased payments to more than 8 million SSI beneficiaries will begin on December 30, 2011.

Some other changes that take effect in January of each year are based on the increase in average wages. Based on that increase, the maximum amount of earnings subject to the Social Security tax (taxable maximum) will increase to $110,100 from $106,800. Of the estimated 161 million workers who will pay Social Security taxes in 2012, about 10 million will pay higher taxes as a result of the increase in the taxable maximum.

Information about Medicare changes for 2012, when announced, will be available at www.Medicare.gov. For some beneficiaries, their Social Security increase may be partially or completely offset by increases in Medicare premiums.

The Social Security Act provides for how the COLA is calculated. To read more, please visit www.socialsecurity.gov/cola.
Friday, October 21st, 2011
12:33 am
Insurance question for you guys...
If anyone can help thanks..... Note I live in Michigan if that matters... Recently I got some BS in the mail that apparently I make to much money on disablity($1,300)so they are now saying I have to pay for my medicare and medicaid. They gave me some excuse that the limit someone can make on disability to get these for free is $1,200(.. -___-..)so because im over, they will now be taking $115 out of my check in the first place for medicare, and now my medicaid is going to be $816 dollars a month...

WTF? Has this happened to anyone before? Oh need I mention they canceled my food stamps now as well. So now im suppose to somehow still pay rent, be able to buy food and pay for all my medical shit? And I have a lot of medical exspences every month. Hell just restatis for my eyes is like $300 bucks. Let alone being in and out of the hospital all the time.... So its like yea... I obviously... can not survive. The numbers don't even make sense.

Has anyone heard of anything like this happening before? I mean I don't see how this even computes. Ive tried talking to the department of human services multiple times and im not getting anywhere.. Does anyone here know anything? Thanks
Saturday, August 20th, 2011
10:45 pm
I have a part time job.

I usually work around 16 hours a week so I stay under SGA

Each year for the past 6-7 years I get an increase in my SSDI check as they base it on my work history including the past year.

What happens is around May or so I get a "larger" check as my benefits now include the wages I made the past year. June and the rest of the year is at the new higher rate.

This year it is close to September and I haven't gotten my "We check your wages to see if you are eligible for more SSDI $ due to your work history" letter yet.

For example suppose my SSDI was $500 and my wages for last year say an increase of $17.

Jan april $500

My may check would be $568

june Dec $517
Wednesday, August 17th, 2011
9:18 pm
SSDI To Me: "Are You Still Disabled?"
So the Social Security Administration has decided that they have to re-evaluate whether or not I'm still fully and permanently disabled.

This is something that the SSA does regularly, because it's not like permanent disabilities are permanent. The fact that part of Chromosome 5 is missing with me--resulting in an incompletely developed lymphatic system--isn't relevant. Despite the fact that I have a birth defect that took twenty years to kick in and that there is no way to fix this, they still have to double-check.

So what's wrong? My doctors will tell them that I'm still disabled, right?

Yeah. But I've been freelancing as an editor, working part-time. I haven't made much money--just enough to pad out the Social Security Disability check, pay for some home repairs (you know how stuff breaks at inconvenient times) and pay down some bills that had been hanging over me. I'm still below poverty level; I've checked.

But I don't know how the Social Security Administration is going to judge this. I don't know if they'll decide that my getting about $321.00 every couple of months for editing a manuscript (penny a word, half up front, half when the editing's done) is too much money. I mean, I've been low-balling what I charge so as not to screw up the disability check...but...I don't know.

I don't get a regular salary that I can count on. Everything is "work when I get work, if I have time and my health can handle it."

So if I lose this check, I am beyond fucked. I have nothing to fall back on and no way that I can pay my bills.

I'm so scared that there aren't any words.

And I feel that this is not fair. I'm still disabled. I'm having more trouble walking, not less. I've been ill almost all summer, thanks to lymphedema and cellulitis. I'm losing strength and I'm losing stamina. I'm trying, but it's HARD.

And now this.

What really gets me is that the woman who insisted that I make this appointment swore up and down that the little amount of work I was doing wouldn't cost me my check or make it go down any. But that's not what the letter from Social Security says. It says losing my check is at least possible. So who's right?

I don't know what I'm going to do if I lose the check. I don't have any options at all, and I have no one to fall back on it. And if I can't pay the bills, I'm going to lose my house, which is the only asset I own.

I don't know what to do. God help me, I don't know what to do.
Tuesday, August 16th, 2011
9:33 pm
Hello All! My name is Melissa, and I'm a para-educator for a special ed department in a public high school. I'm part way through my master's degree and teaching certificate, and for one of my classes I'm doing some research on what people think about including multimedia and technology in instruction for students with IEPs, FSPs, and 504 plans. I'd really appreciate any and all participation in my project.

If you are the PARENT or GUARDIAN of a child with an IEP, FSP, or 504 plan, please fill out my short, anonymous survey: http://www.surveymonkey.com/s/9GMNBFP

If you are a STUDENT or a FORMER STUDENT with an IEP, FSP, or 504 plan, please fill out my short, anonymous survey: http://www.surveymonkey.com/s/9BTKGJF

If you are a certificated TEACHER, please fill out my short, anonymous survey: http://www.surveymonkey.com/s/93NBY3D

Thank you so much for all your help!
Tuesday, August 9th, 2011
1:42 pm
rant about medicare
after two years on disability,i just got medicare. so i went to my np who prescribes my prozac,and i paid her a copay. turns out medicare didn't pay her the rest because i have a deductible? and they are taking 115 dollars out of my disability check this month for medicare. medicare is more expensive than the insurance i got through work.i don't understand why people get upset by medicare payments when the recipients are paying so much. i can't really afford it. i have applied for help,but it's just ridiculous. i just don't get it.

edit 8/10 thanks for the encouraging and informative replies. i appreciate it.
Friday, April 8th, 2011
12:19 am
NY Times: Disabled, but Looking for Work
There was a lot in this article that I think folks in this community would find informative...

NY Times: Disabled, but Looking for Work
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